Sunday, May 9, 2010

Prader Willi Syndrome













Prader Willi Syndrome (PWS) is a rare genetic syndrome disorder. Prader-Willi syndrome is a congenital (present at birth) disease.Do not stop eating even when full. They have muscle weakness, abnormal behavior, is obsessed with a speech disorder. In Uruguay there is 40 people with Prader-Willi syndrome, a rare condition that is little known. Yes, it is the Prader-Willi, but give me a minute. First, there are many large, important reasons to travel – to relax and a break from daily life to take, in order to discover the natural wonders, immerse yourself in different cultures near and far. I love my children to learn the different ways people live in this world – and we know that there is no “right” way of being. World Voyage is not the only thing that helps children learn tolerance and acceptance, though. Sometimes, the friendships with the neighbors to encourage all that is needed.

Coping with a rare disease to fight twice, because the difficulties of a chronic illness adds little information exists to support the patient and his family. Maria Ines Fonseca is about: his daughter was diagnosed with Prader Wili syndrome shortly after birth and is now looking into the consciousness of the nature of the cases in Uruguay to increase. She remembers that her daughter was “low muscle tone was so sweet, did not answer.”

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